Monday, July 15, 2013

Total Thyroidectomy and Breastfeeding

We found this stupid lump when I was pregnant, but there wasn't much we could do about it at the time, so we all agreed to wait until after Jodene came. I literally just pretended it wasn't there for months.

A month or so after she came I had a biopsy and we all agreed the thyroid should come out. At the surgical consult for my thyroidectomy I explained to the surgeon that I'd still be breastfeeding when I had surgery. He said I'd have to pump and dump for 48 hours. At the time surgery was weeks away and we were hopeful that Jodene would be taking a bottle by July. At about 5 weeks before surgery she was consistently refusing a bottle, so I started researching and found some great resources that suggested maybe I didn't need to pump and dump for that long, or even at all. I didn't find many stories of nursing mom's having surgery, so I figured I'd put this out there.

About 3 weeks before my surgery I contacted the hospital I'd be having surgery at and asked about breastfeeding after surgery and having my daughter with me overnight in the hospital. I was transferred multiple times, and given a lot of incorrect information. I'd have to pump and dump for anywhere from 1-2 days. My daughter wouldn't be allowed on the floor, I couldn't have her with me prior to surgery, etc.. I was pretty upset and I called the patient advocacy office for the hospital and asked about their policy for nursing moms who need to have surgery.

I got an entirely different response. They got me in touch with the hospital lactation consultant and the nurse manager for the center for women and infants. They were both amazing. The nurse manager from the center for women and infant's helped negotiate with the nurse manager for the surgical recovery floor so we'd have a private room so Jodene wouldn't be keeping a roomate awake, and the lactation consultant helped me research the medications I'd be getting to make sure they were compatible with breastfeeding. The moral here is talk to the right people and don't take no for an answer.

There were some bumps along the way, including the pre-admissions folks, the surgeon, and the anesthesiologist. But with a combo of niceness, determination, and information I was able to get them to agree.

My total thyroidectomy was July 11, and we were able to have Jodene with me and nursing up until wheeling me into the OR, successfuly breastfeed in the recovery room, and have Jodene with me and nursing all through the night and day. It was amazingly sucessful.

 I woke up in recovery and the nurse asked if I was feeling up to nursing. I asked her what medications I had gotten during surgery and they were TOTALLY different than what I had discussed with the anesthesia department 2 days earlier. So... the nurse very kindly called the lactation consultant who checked on all the meds I had gotten and gave us the go-ahead to nurse. What lovely ladies and totally instrumental in making this work. The recovery room nurse even argued with the anesthesiologist who was not on board at all. He wanted me to wait 12 hours to nurse even though this had all been worked out beforehand, and the lactation consultant checked all the meds for us. Eventually it was agreed that I'd be "difficult" and he'd disagree, although he did keep talking loudly about that's not how they do it at Brigham and Women's.

We ignored him, he left and Aaron and my mom helped get her into position and hold her while I was in recovery and the hours after surgery when holding her hurt. We nursed in the laid back or biological breastfeeding position, and with help it was manageable. We brought her mini-cosleeper with us to the hospital and she slept pretty well in it. We also kept her sleep sheep strapped to it, which helped keep her sleeping through the beeps and bumps and nightime visits by nurses. Obviously another adult had to stay overnight with me as I couldn't be her only caretaker, so poor Aaron slept curled up in what looked to be a very uncomfortable chair, and brought her to me when it was time to nurse. Lots of the nurses didn't even know she was there. If she started really crying my mom or Aaron would strap her in the Ergo and take her off the floor so she didn't bother anyone.

I am so grateful that my mom and fantastic husband are so supportive of me and Jodene and breastfeeding. They, along with a great lactation consultant and some very breastfeeding friendly nurses were the people who made this possible. So if you have surgery coming up, just know it can be done with some planning and if you hit roadblocks just look for ways around them and call your office of patient advocates.

4 comments:

  1. Thank you for sharing your experience. I just found out that I have thyroid cancer and have a ten week old. I am already trying to find support in the hospital where I'll have surgery so that I might be able to do the same as you did (I live in Northern Virginia). Did anyone mention radiation therapy to you? I am hoping I won't need it, but am looking for others in the same boat in case I do.

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  2. Hi Sarah,
    I am so glad to find your blog. I am diagnosed with goiter in my right thyroid, and i will have surgery in 2 weeks. Also i have my 7 months old exclusive breastfeeding. My situation is similar to yours. He refused to take bottle and prefer directly nursing. My surgeon told me that i need to pump and dump for 48 hrs after surgery. It is little confused since i have found some contradiction about anesthesia.

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    1. Can you share what happened after your surgery and how your supply was impacted? Thank you!

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  3. Thank you for sharing your experience and the resources you used to navigate breastfeeding and thyroid surgery removal.
    I have had a goiter albeit small one that I knew about from the age of 18 or 19 on the right nodule. At 28 I was put on synthroid to try to reduce the size, which worked but not too much so we stopped it. I have never had any trouble breathing or swallowing or any of the other goiter/thyroid related issues. I had my first child at 36 and recently had my second at 40. After my first the size of my goiter increased, but it wasn't too bad to me. A new endocrinologist recommended removal after first meeting with me and getting the measurements at around 4.4cm in 2016. I did not have it removed then. For the past two years it's just been monitored and biopsied, all benign thank goodness.
    Now after having my second child, the gland has grown larger. I noticed it was larger at around month 5 and a half after having a bad cold and cough
    The didn't go away from the end of November till about last week. I also developed a cough during my first pregnancy that didn't go away till weeks after the birth. In the last month or so lifting my arms and stretching causes coughing due to the gland being larger (6.5cm) and causing my shirts and sweaters to momentarily strangle me which has made me seriously consider a hemi thyroid removal. My concern is like you, I have a 5 week old who is exclusively breastfed, she will take a bottle, but I do not wish to have to stop for a couple days or pump and dump and be without my newborn for two days.
    Serious question though, was your hospital bed after the surgery more comfortable than labor and delivery bed ? I swear those labor and delivery beds are like 3/4 inch plywood with 1/2 inch foam. ��

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